UKPID Registry: Downloads 

FileTypeSizeDownload
unPAD Level 2 Questionnaire - version 1.0, 06-Mar-2020DOCX147.68 KB Download
ESID Follow-Up Questionnaire - version 1.0, 06-Mar-2020DOCX133.99 KB Download
ESID Deceased Questionnaire - version 1.0, 06-Mar-2020DOCX127.43 KB Download
PIS-ICF Parental for under 16s - version 2.1, 04-Jun-2020DOC101.50 KB Download
ESID Baseline Questionnaire - version 1.0, 06-Mar-2020DOCX140.24 KB Download
PIS-ICF Young persons 11-15 - version 2.1, 04-Jun-2020DOC103.00 KB Download
UKPID Registry Invitation Letter - version 2.0, 20-Feb-2020DOC72.50 KB Download
PIS-ICF Adults - version 2.1, 04-Jun-2020DOC97.50 KB Download
Password Application Form - version 1.2, 11-Nov-2019DOC81.50 KB Download
Agreement UKPIN – Documenting Centre - version 2.4, 11-Nov-2019DOC99.50 KB Download
For more information click herePDF165.82 KB Download
combinedJSON4.12 KB Download
Registry Research Proposal FormDOC66.00 KB Download
ESID Differential diagnosis of hypogammaDOCX13.89 KB Download
ESID Disease TreePDF69.49 KB Download
Data Access and Publication RulesDOC62.50 KB Download
ESID Registry Diagnostic CriteriaPDF138.95 KB Download
Poster UKPID Registry UKPIN Update Nov 2015PPT222.00 KB Download
Diseases in the ESID Online DatabasePDF17.60 KB Download
New Registry User Manual (From ESID)